Data collection ethical guidelines

Ethical Guidelines for Evaluation with Children
Ethical guidelines are crucial when carrying out research. Such guidelines help to minimize the risk of potential harm resulting from the data collection process to participants, researchers and others, and ensure that any remaining risks are outweighed by the potential benefits. Research ethics and methodologies are closely linked, with ethically sound research protocols and tools adding to the value of the research.
Evaluating the impacts of programs and policies on children presents particular challenges.  Many of these are complex, the impacts are often long-term, and children have particular vulnerabilities to harm. This dashboard includes information about evaluation for children - processes and measures for gathering and reporting data on behalf of children.  It includes information on evaluation with children - engaging them in the process of gathering and interpreting data.  And it includes information on evaluation by children - where children are engaged in the decision making about the evaluation and in using the findings from the evaluation.
Ethical Considerations when Collecting Data
The main ethical frameworks that underpin ethical guidelines for research are based on duties (deontological), best outcomes (consequentialist) rights, and virtues. Guidelines relevant to research with children draw on many principles and dimensions from across the entire range of ethical approaches
A newly developed Alere™ Filariasis Test Strip (FTS) reader was recently evaluated in Haiti by the CDC
A newly developed Alere™ Filariasis Test Strip (FTS) reader was recently evaluated in Haiti by the CDC
Dilemmas include the possible impacts of participation in research, particularly the risk of discomfort, distress, or trauma and the risk that others will learn of their involvement in the research. Challenges also include those related to the provision of information, including how much information to provide to children and how much to provide to parents; children’s consent to participate in research; and confidentiality in relation to child protection.
Collecting Data on Children
Article 12 of the UN Convention on the Rights of the Child states that children are entitled to participate in all decisions affecting them, regardless of their age.
Article 12 of the UN Convention on the Rights of the Child states that children are entitled to participate in all decisions affecting them, regardless of their age.
There may be many reasons that you are talking with children- you may be interested in their opinions and perspectives as a part of your programming, involving children in monitoring or talking to children for purposes of support.  You may be talking to children alone, in pairs or bigger groups of children.

1. Atmosphere


When you talk to children, you are as the adult the one responsible for the communication, although talking to children is not always predictable.  You should take care to create the best possible atmosphere by using the following principles:

A. Safety

It is essential for children to feel safe.  This will make them more open, and give a good experience of joining the group.

B. Validation

Create the atmosphere in which all the participants are valued, and that all statement are OK, as long as they comply with the rules of mutual respect in the group.  Many children in difficult circumstances feel shameful and have low self confidence- let them feel that they are valued and acknowledged.

In a group, everyone is a member, and should be allowed space.  Children will share more with the group if they feel included and the group atmosphere is better if you make sure to include everyone

2.  Purpose


State your purpose clearly.  Are you going to pass information to children, do you need information from them (could be for an assessment) or are you talking to children with the purpose of comfort, reassurance and support?

Tell the children what your purpose is, and keep that purpose at the back of your head. Children may start talking about something else, be prepared to change focus according to the children’s interests. Sometimes children change focus to get a small “break”- allow some small talk, it can be relaxing and create a good atmosphere in the group, but bring the conversation back on track, respecting the personal space of the children.

JPAL's Post Primary Education (PPE) initiative aims to generate rigorous evidence on policies to increase access to education in developing countries
JPAL's Post Primary Education (PPE) initiative aims to generate rigorous evidence on policies to increase access to education in developing countries

3.  Prepare Yourself



Remember that most children enjoy talking to an adult who is genuinely interested to hear what they are sharing. Remember to be aware of the children’s and your own body language. Are you at ease and relaxed? Remember that you are responsible for the communication, but situations can be unpredictable. You cannot solve the situation for all children, but listening to them is important and a great support for most children.

Key Resources
If you are starting to think about how to genuinely involve children’s participation in research, you better be ready to read. By reading some of the great material on research with children you can begin to understand children’s position in research – even in our adult-centric world.